For patients and caregivers

Affordability is the seventh of the 10 Exits of Therapy™, and it is the only one that can change while you are standing still.

If the price jumped and nothing about your medicine changed, your benefit year almost certainly reset. There are three separate places help can come from, and you have to ask for each of them on its own.

Why January is different

Most plans run on a calendar year. On January 1 your deductible goes back to zero, which means you are paying full negotiated price again until you have spent your way back up to where you were in December. The medicine costs what it always cost. Your share of it is what moved.

This is the single most common reason a treatment that was working in the fall stops in the winter. It is not a price increase and it is not a mistake. It is the design of the benefit, and almost nobody explains it in advance.

THE SAME HELP, TWO DIFFERENT YEARS Assistance counts toward your deductible Deductible fills while you are helped Plan pays An accumulator is in place Help runs out You owe the full deductible, unassisted This is the day people stop The money was spent either way. Only one of these years ends with you still on treatment.
FIGURE 1. The same assistance, counted two different ways.

What an accumulator does

If you use a manufacturer copay card, some plans accept the money and do not count it toward your deductible. That is called an accumulator. The practical effect is that the help runs out mid year and you discover you still owe the whole deductible, at exactly the point you thought you were through it.

Twenty-five states plus the District of Columbia and Puerto Rico now require assistance to count toward your cost sharing. Whether that protection reaches you depends on how your plan is structured, and self-insured employer plans generally sit outside state rules. This is worth one phone call, because the answer changes what you should do next.

The dollars eventually net out somewhere in a ledger. The days you spend off treatment do not come back.

Three sources of help, and they are separate

Manufacturer copay programs. Run by the company that makes the medicine. Usually the fastest to apply for. If you have Medicare or Medicaid these are generally not available to you, which is a rule about federal programs rather than anything about your situation.

Independent charitable foundations. Separate organizations, usually organized by disease rather than by product. Open to people on Medicare. They run out of funds and reopen, so a no in March can be a yes in June.

The pharmacy itself. Cash price, a different pharmacy, a ninety day fill instead of thirty, or a discount program can each change the number. Ask the pharmacist to run the alternatives rather than assuming the first number is the only one.

People routinely apply to one of the three, get turned down, and stop. They are three different doors and being refused at one tells you nothing about the others.

What to ask at the counter

Ask the pharmacy to run it again with every card and grant you have on file, because a card that was not attached is the most common reason a price looks wrong. Ask what the cash price is, since occasionally it is lower than the insured price. Ask whether a ninety day supply changes the math.

Then ask your plan the one question that decides your year: does my plan count manufacturer assistance toward my deductible. Write down the answer and who gave it to you.

Why this exit exists

Affordability is seventh in the 10 Exits of Therapy™ because of everything that had to work before you got here. Diagnosis, a prescriber, a prescription, enrollment, coverage and authorization all cleared. And then a number at a counter, on a day nobody warned you about, ends the treatment anyway.

That is what makes this exit worth naming. Almost nobody who leaves here decided the treatment was not worth it.

Affordability is exit 7 of ten. If your treatment stalled somewhere else, find which one at Where did your treatment stop? Exit 6 is authorization. Exit 8 is fulfillment. Everything written for patients is gathered on the For Patients page. Terms used here are defined in the glossary.

This is navigation help, not medical advice, and it is not financial advice. It does not replace anything your prescriber or pharmacist tells you, and decisions about diagnosis and treatment belong with your licensed clinician. Who pays for this work is set out in the disclosure.

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